{"id":37182,"date":"2020-11-11T09:11:36","date_gmt":"2020-11-11T12:11:36","guid":{"rendered":"https:\/\/hoycanelones.com.uy\/?p=37182"},"modified":"2020-11-11T14:18:10","modified_gmt":"2020-11-11T17:18:10","slug":"tras-recurso-de-amparo-amadeo-un-bebe-con-atrofia-medular-espinal-recibira-medicacion","status":"publish","type":"post","link":"https:\/\/hoycanelones.com.uy\/?p=37182","title":{"rendered":"Tras recurso de amparo, Amadeo, un beb\u00e9 con atrofia medular espinal, recibir\u00e1 medicaci\u00f3n"},"content":{"rendered":"<p><em>Tal como inform\u00e1ramos en reiteradas ocasiones, Amadeo es un beb\u00e9 de la localidad de Los Cerrillos que necesita ayuda para conllevar una atrofia medular espinal. En los \u00faltimos meses, la familia del peque\u00f1o ha venido llevando adelante una serie de iniciativas solidarias para ayudar al chico.<\/em><\/p>\n<p>A Amadeo le diagnosticaron atrofia medular espinal grado 1 cuando ten\u00eda tres meses. Hoy, con diez meses de edad, debe utilizar un respirador artificial, necesita de fisioterapia, medicamentos y dem\u00e1s insumos. Como el ni\u00f1o tiene muy poca movilidad, necesita de un fisioterapeuta que lo visite peri\u00f3dicamente y collarines para la traqueotom\u00eda, entre otros materiales. Al depender de un respirador, el chico tambi\u00e9n necesitar\u00e1 un generador de energ\u00eda de emergencia por alg\u00fan corte de luz o inconvenientes con la electricidad, as\u00ed como una bater\u00eda externa para el respirador.<br \/>\nTal como los familiares le informaran a este medio, el gasto m\u00e1s costoso est\u00e1 vinculado a la medicaci\u00f3n que debe recibir Amadeo. Una de las opciones para el tratamiento es el f\u00e1rmaco Spinraza, que tiene el elevado costo de 750.000 d\u00f3lares el primer a\u00f1o de vida y 125.000 d\u00f3lares cada dosis luego del a\u00f1o. De llevarse adelante el tratamiento con Spinraza, Amadeo deber\u00e1 recibir cuatro dosis por a\u00f1o.<br \/>\nEn ese sentido, hab\u00edamos informado que la familia de Amadeo ven\u00eda intentando conseguir el medicamento Spinraza a trav\u00e9s de un recurso de amparo, porque de otra manera no podr\u00eda pagarlo. La buena noticia lleg\u00f3 en las \u00faltimas horas, cuando familiares, a trav\u00e9s de la movida en las redes sociales \u2018Todos por Amadeo\u2019, informaron que el beb\u00e9 podr\u00e1 recibir la medicaci\u00f3n tras la sentencia a favor dictada en su caso.<br \/>\n\u201cQueremos contarles que ayer (por el pasado mi\u00e9rcoles) fue la audiencia por el recurso de amparo para que Amadeo obtenga Spinraza para su tratamiento. En la tarde de hoy (por el pasado jueves) se dict\u00f3 sentencia: \u00a1Amadeo gan\u00f3! \u00a1Gan\u00f3 su medicaci\u00f3n al Estado! Un derecho al que se deber\u00eda acceder sin tener que pasar por un juicio. Muy agradecidos al equipo de abogados de Facultad de Derecho, sobre todo a Victoria y Andrea, que fueron las que pelearon para que se lograra\u201d, indica el comunicado emitido por \u2018Todos por Amadeo\u2019.<\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>Tal como inform\u00e1ramos en reiteradas ocasiones, Amadeo es un beb\u00e9 de la localidad de Los Cerrillos que necesita ayuda para conllevar una atrofia medular espinal. <a class=\"mh-excerpt-more\" href=\"https:\/\/hoycanelones.com.uy\/?p=37182\" title=\"Tras recurso de amparo, Amadeo, un beb\u00e9 con atrofia medular espinal, recibir\u00e1 medicaci\u00f3n\">[&#8230;]<\/a><\/p>\n<\/div>","protected":false},"author":2,"featured_media":36671,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[],"class_list":["post-37182","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Tras recurso de amparo, Amadeo, un beb\u00e9 con atrofia medular espinal, recibir\u00e1 medicaci\u00f3n - HOY CANELONES<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hoycanelones.com.uy\/?p=37182\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Tras recurso de amparo, Amadeo, un beb\u00e9 con atrofia medular espinal, recibir\u00e1 medicaci\u00f3n - HOY CANELONES\" \/>\n<meta property=\"og:description\" content=\"Tal como inform\u00e1ramos en reiteradas ocasiones, Amadeo es un beb\u00e9 de la localidad de Los Cerrillos que necesita ayuda para conllevar una atrofia medular espinal. 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